Last Tuesday was our visit to the pediatric GI doctor. She came recommended from our regular pediatrician, sees patients in West Pasco County and is on her insurance, so I made the appointment and off we went, finally hoping to get some answers. Answers that seem to elude us with her regular pediatrician, despite changing from breast milk to 4 different formulas. The office seemed eerie, I guess because it was at a Pediatric Surgery Center, so it seemed a bit drastic of a move to me. GI doctor to SURGERY... hmmm... maybe I'm over thinking this a bit. But in we went. My grandmother came with me, so she could hear from the horse's mouth what the doctor thought. I also felt if she had anything else to add - she could tell it to the Dr., instead of giving it to me when I got home!
Anyway, on the counter inside the exam room was an occult stool sample collection kit with gloves and KY Jelly. Odd, I thought, is this the "PAP smear kit" for kids with belly problems? Yikes! Teaching them young to look out for those tubes of KY! However, we wouldn't be needing that for this visit, thankfully. The exam was thorough and we had an opportunity to ask questions and she explained a lot of things to us. It basically boiled down to this - Amelia is allergic/reactive to the proteins in her formula. No matter where she gets it from: mom, cow's milk or soy, she is going to react to it. She may or may not grow out of this problem, and we may have not seen the worst of it yet (great). She may or may not have a problem in digesting other foods later on, so stay away from foods that contain milk or soy proteins. Ever try that? That is HARD! Her fix for now is a hypoallergenic formula (Allimentum) that is super expensive. Thank goodness for WIC! If she has problems with Allimentum, her next step is a prescription elemental formula that only has the most basic of proteins in the mix. However, most babies have to be tricked into drinking the stuff because it is nasty (her words, not mine).
She also has reflux, or GERD. This will definitely get worse before it gets better. This disease generally peaks between 4 months and 6 months, then for most babies, tends to slow up and by 2 or so, disappear all together. She is on prevacid for this, because most other acid meds use milk and or soy proteins for binding. See how hard this milk protein thing is? Anyway, the prevacid is going to take 7 to 10 days to work, and meanwhile you can take her off the Zantac because her dose really isn't high enough to do anything for her anyway, I was told.
We were also told that she will continue to spit up mucous, that is normal in GERD babies (Gram still doesn't buy into this one. She says in all her life she has never seen a baby spit up so much mucous and it be normal); she may vomit up to 20 times a day and as long as she still gains weight, it is ok; thicken her bottles with cereal or thickener to the consistency of honey or so to help slow up the vomiting; the prevacid should help control the pain of the acid, but won't really stop the acid altogether. If there is breakthrough pain - treat with regular strength Malox. The adult stuff, I ask? Yep - the adult stuff. We are now dosing 3 times plus daily with the Malox. I'm not so certain that the prevacid is working... And her poops can be any color from normal to greenish/grayish and can be slowed by using rice cereal, and softened by using oatmeal cereal. BTW - only use Beechnut or Earth's Best, because the rest use soy and milk proteins as fillers/binders. Uuuggghhh... this is a long road ahead...